ChILD UK is part of a group of International chILD organisations and support groups. We share the same mission and values in terms of moving chILD forward and collaborating on research opportunities and the creation and distribution of educational materials.
We are a UK-based support group, but there are other chILD support groups around the world that you may wish to get in contact with:
ChILD Australia Rare Lung Disease Family Network
Disease specific community groups:
Surfactant deficiency support group
These groups are all on Facebook. Over the years, we have tried to use forums, but unfortunately, engagement can be challenging due to the rarity of chILD conditions. Therefore, Facebook is our most convenient way to connect with other chILD families. All of the groups are private and are moderated. You may be required to answer questions before joining the groups. For young people affected with chILD we have set up a Discord group. Contact us if you would like more information on this.
If there are any other groups available or you run a group and wish to be added to this list, please contact us on the Contact Form or email info@childlungfoundation.org