ChILD UK has various ways of helping our chILD families. From providing emotional and practical advice, we’re always happy to help.
Medical Research
The development of new treatments and methods of diagnosis is vital to our understanding of chILD. Research but how helping chILD children live day to day with their disease.
ChILD UK have contributed to the following medical research:
- Donation to University of Munich for continuing ChILD research into surfactant dysfunction
- Penn University $100,000 Bike a Million for ChILD (Team Bronchiolitis Obliterans)
- UK Family Psychosocial Survey (ChILD – Family Perspectives)
- American Thoracic Society, ChILD Foundation US and ChILD Lung Foundation joint research award (NEHI)
ChILD Retreats
Over the years, our events have been funded by generous donors, whomOur biennial retreats are a conference for families affected by chILD. Over the years our events have been funded by generous donors who we thank wholeheartedly.
The purpose of our event is for families, children and their siblings to connect, learn and share their chILD experience. Families have commented on the “safe space” the retreat provides and having the ability to have moments of ordinariness in a group space. We provide speakers who generously give their time to talk about chILD and other related topics such as feeding or genetics.
PLEASE NOTE: Due to lack of funding and the expansion of the ChILD Community, with great regret, we have paused these events.