What is ChILD?

Children’s Interstitial Lung Disease (chILD) is a group of rare lung diseases found in infants, children and adolescents. There are a large number of interstitial and diffuse diseases which fall under the chILD umbrella. Many of the diseases, although having very different causes, will present with similar symptoms and signs, and these form part of the ‘chILD syndrome’. The main feature of chILD is that oxygen has problems passing into the bloodstream via the lungs, and there are variable degrees of lung scarring.

The severity of disease and long term outcomes will vary considerably from person to person. If you are a parent/carer for a chILD sufferer please contact their specialist for medical advice as they may be able to indicate the disease course. Do not be surprised if they cannot. ChILD is a relatively new and unresearched group of diseases. Generally some children may grow out of their condition, others will need lung transplantation and sadly others may die.

Adults can also suffer from Interstitial Lung Disease however, chILD should not be confused with these as even when they have the same name, they are often very different diseases.

Please check out the side panel for more Information. For the family perspective of chILD please read: ChILD – Family Perspectives