ChILD Booklet

First published in July 2011, this guide is for families and carers affected with chILD.

Based on the US version ‘Get up and go with chILD’, it has been updated with UK information and terminology. This comprehensive guide to chILD has been highly praised and recommended to families by medical practitioners across the UK. The booklet covers a wide range of subject areas such as:

  • disease management
  • feeding
  • travel
  • emotional support

We are proud to have had the booklet overseen and approved by the following medical professionals:

Professor of Paediatric Respirology, Imperial College, London, UK

Consultant Paediatric Chest Physician, Royal Brompton Hospital

Consultant Respiratory Paediatrician, Royal Hospital for Sick Children. Edinburgh, UK

Chair for British Paediatric Orphan Lung Disease Registry (BPOLD)

Child and Adolescent Psychiatrist, Child and Adolescent Mental Health Services, Wirral, UK 


To request a copy, please email: